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Browsing by Author Tingley, K
Showing results 1 to 7 of 7
| Issue Date | Title | Author(s) |
|---|---|---|
| 2016 | Child and family experiences with inborn errors of metabolism: a qualitative interview study with representatives of patient groups | Tingley, K; Chakraborty, P; Coyle, D; Kronick, JB; Laberge, A-M; Little, J; Miller, FA; Mitchell, JJ; Prasad, C; Siddiq, S; Siriwardena, K; Sparkes, R; Speechley, KN; Stockler, S; Trakadis, Y; Wilson, BJ; Wilson, K; Potter, BK |
| 2017 | Establishing core outcome sets for phenylketonuria (PKU) and medium-chain Acyl-CoA dehydrogenase (MCAD) deficiency in children: study protocol for systematic reviews and Delphi surveys. | Potter, BK; Hutton, B; Clifford, TJ; Pallone, N; Smith, M; Stockler, S; Chakraborty, P; Barbeau, P; Garritty, CM; Pugliese, M; Rahman, A; Skidmore, B; Tessier, L; Tingley, K; Coyle, D; Greenberg, CR; Korngut, L; MacKenzie, A; Mitchell, JJ; Nicholls, S; Offringa, M; Schulze, A; Taljaard, M; Canadian Inherited Metabolic Diseases Research Network |
| 10-Apr-2020 | Evaluation of the quality of clinical data collection for a pan-Canadian cohort of children affected by inherited metabolic diseases: Lessons learned from the Canadian Inherited Metabolic Diseases Research Network | Tingley, K; Lamoureux, M; Pugliese, M; Geraghty, MT; Kronick, JB; Potter, BK; Coyle, D; Wilson, K; Kowalski, M; Austin, V; Brunel-Guitton, C; Buhas, D; Chan, AKJ; Dyack, S; Feigenbaum, A; Giezen, A; Goobie, S; Greenberg, CR; Ghai, SJ; Inbar-Feigenberg, M; Karp, N; Kozenko, M; Langley, E; Lines, M; Little, J; MacKenzie, J; Maranda, B; Mercimek-Andrews, S; Mohan, C; Mhanni, A; Mitchell, G; Mitchell, JJ; Nagy, L; Napier, M; Pender, A; Potter, M; Prasad, C; Ratko, S; Salvarinova, R; Schulze, A; Siriwardena, K; Sondheimer, N; Sparkes, R; Stockler-Ipsiroglu, S; Trakadis, Y; Turner, L; Van Karnebeek, C; Vallance, H; Vandersteen, A; Walia, J; Wilson, A; Wilson, BJ; Yu, AC; Yuskiv, N; Chakraborty, P |
| 2016 | Experiences of caregivers of children with inherited metabolic diseases: A qualitative study | Siddiq, S; Wilson, BJ; Graham, ID; Lamoureux, M; Khangura, SD; Tingley, K; Tessier, L; Chakraborty, P; Coyle, D; Dyack, S; Gillis, J; Greenberg, C; Hayeems, RZ; Jain-Ghai, S; Kronick, JB; Laberge, A-M; Little, J; Mitchell, JJ; Prasad, C; Siriwardena, K; Sparkes, R; Speechley, KN; Stockler, S; Trakadis, Y; Wafa, S; Walia, J; Wilson, K; Yuskiv, N; Potter, BK |
| 2015 | Reimbursement-based economics - What is it and how can we use it to inform drug policy reform? | Coyle, D; Lee, KM; Mamdani, M; Sabarre, KA; Tingley, K |
| 2015 | Scoping review of patient- and family-oriented outcomes and measures for chronic pediatric disease. | Karaceper, MD; Trakadis, Y; Mitchell, JJ; Chakraborty, P; Tingley, K; Coyle, D; Grosse, SD; Kronick, JB; Laberge, A-M; Little, J; Prasad, C; Sikora, L; Siriwardena, K; Sparkes, R; Speechley, KN; Stockler, S; Wilson, BJ; Wilson, K; Zayed, R; Potter, BK; Canadian Inherited Metabolic Diseases Research Network |
| 2018 | Using a meta-narrative literature review and focus groups with key stakeholders to identify perceived challenges and solutions for generating robust evidence on the effectiveness of treatments for rare diseases | Tingley, K; Coyle, D; Graham, ID; Sikora, L; Chakraborty, P; Wilson, K; Mitchell, JJ; Stockler-Ipsiroglu, S; Potter, BK |