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  <title>BURA Community:</title>
  <link rel="alternate" href="http://bura.brunel.ac.uk/handle/2438/8616" />
  <subtitle />
  <id>http://bura.brunel.ac.uk/handle/2438/8616</id>
  <updated>2026-04-22T13:29:58Z</updated>
  <dc:date>2026-04-22T13:29:58Z</dc:date>
  <entry>
    <title>Navigating Transition to Adulthood: Perspectives from Young People with Cerebral Palsy, Parents, and Health Professionals</title>
    <link rel="alternate" href="http://bura.brunel.ac.uk/handle/2438/33157" />
    <author>
      <name>Norris, M</name>
    </author>
    <author>
      <name>Fortune, J</name>
    </author>
    <author>
      <name>Ryan, J</name>
    </author>
    <author>
      <name>Walsh, A</name>
    </author>
    <author>
      <name>Kroll, T</name>
    </author>
    <author>
      <name>Lavelle, G</name>
    </author>
    <author>
      <name>Hensey, O</name>
    </author>
    <id>http://bura.brunel.ac.uk/handle/2438/33157</id>
    <updated>2026-04-17T02:00:56Z</updated>
    <published>2026-01-01T00:00:00Z</published>
    <summary type="text">Title: Navigating Transition to Adulthood: Perspectives from Young People with Cerebral Palsy, Parents, and Health Professionals
Authors: Norris, M; Fortune, J; Ryan, J; Walsh, A; Kroll, T; Lavelle, G; Hensey, O
Abstract: ...
Description: ...</summary>
    <dc:date>2026-01-01T00:00:00Z</dc:date>
  </entry>
  <entry>
    <title>Determinants of private health insurance uptake and its association with healthcare utilization in Gulf Cooperation Council countries: a systematic review</title>
    <link rel="alternate" href="http://bura.brunel.ac.uk/handle/2438/33146" />
    <author>
      <name>Althabaiti, KS</name>
    </author>
    <author>
      <name>Bhuiyan, MB</name>
    </author>
    <author>
      <name>Hunsberger, M</name>
    </author>
    <author>
      <name>Ahmed, S</name>
    </author>
    <author>
      <name>Khan, J</name>
    </author>
    <id>http://bura.brunel.ac.uk/handle/2438/33146</id>
    <updated>2026-04-14T02:01:05Z</updated>
    <published>2026-03-25T00:00:00Z</published>
    <summary type="text">Title: Determinants of private health insurance uptake and its association with healthcare utilization in Gulf Cooperation Council countries: a systematic review
Authors: Althabaiti, KS; Bhuiyan, MB; Hunsberger, M; Ahmed, S; Khan, J
Abstract: All Gulf Cooperation Council (GCC) countries have a multi-payer healthcare system that comprises governmental health coverage (GHC), funded by the government, and private health insurance (PHI), mainly sponsored by employers and purchased by individuals. Both are expected to influence healthcare utilization and contribute to system efficiency and patient well-being. This systematic review explored the determinants of PHI uptake and its association with healthcare service utilization in the presence of GHC in GCC countries. We systematically searched CINAHL, PubMed, Scopus, Web of Science, and Cochrane Library for peer-reviewed studies published between January 2012 and October 2022. Study quality was assessed using the Critical Appraisal Skills Programme (CASP) checklists for both quantitative and qualitative studies, following PRISMA guidelines. Twenty-six studies met the inclusion criteria. Determinants of PHI uptake were mapped to Andersen’s Behavioral Model of Health Services Use (BMHSU) and categorized into (1) predisposing factors (sex, age, marital status, and education), (2) enabling factors (employment/income and health system-related factors such as access and perceived service quality), and (3) need factors (health status, including chronic noncommunicable diseases). PHI uptake was positively associated with being male, married, highly educated, employed with a high income, and having chronic diseases. PHI was positively associated with healthcare utilization, particularly routine check-ups, preventive services, and the use of prescribed medicines. In GCC countries, PHI uptake is influenced by sociodemographic and socioeconomic characteristics, health status, and perceived service quality. PHI is also associated with higher healthcare utilization, underlining the need for evidence-informed policies that enhance equity and expand coverage.
Description: Paper context: &#xD;
• Main finding: Private health insurance uptake across Gulf Cooperation Council countries was influenced by sociodemographic and socioeconomic characteristics, health status, and the quality of services. Additionally, private health insurance was likely to be associated with higher utilization of healthcare services.&#xD;
&#xD;
• Added knowledge: This systematic review identifies how shifts in health policy across Gulf Cooperation Council countries, particularly the move from universal public coverage toward mixed systems combining governmental and mandatory private insurance which have redefined the determinants of private health insurance enrollment and healthcare utilization. It highlights how socioeconomic characteristics and policy reforms interact to shape access patterns under differing insurance schemes.&#xD;
&#xD;
• Global health impact: The findings can support policymakers in developing equitable and sustainable health financing reforms toward universal health coverage.; Supplemental material is available online at: https://www.tandfonline.com/doi/full/10.1080/16549716.2026.2647528# .</summary>
    <dc:date>2026-03-25T00:00:00Z</dc:date>
  </entry>
  <entry>
    <title>Ageing well with a lifelong disability: A scoping review</title>
    <link rel="alternate" href="http://bura.brunel.ac.uk/handle/2438/33091" />
    <author>
      <name>Smith, KJ</name>
    </author>
    <author>
      <name>Gupta, S</name>
    </author>
    <author>
      <name>Fortune, J</name>
    </author>
    <author>
      <name>Lowton, K</name>
    </author>
    <author>
      <name>Victor, C</name>
    </author>
    <author>
      <name>Burke, E</name>
    </author>
    <author>
      <name>Carew, MT</name>
    </author>
    <author>
      <name>Livingstone, E</name>
    </author>
    <author>
      <name>Creeger, M</name>
    </author>
    <author>
      <name>Shanahan, P</name>
    </author>
    <author>
      <name>Walsh, M</name>
    </author>
    <author>
      <name>Ryan, JM</name>
    </author>
    <id>http://bura.brunel.ac.uk/handle/2438/33091</id>
    <updated>2026-04-02T02:00:56Z</updated>
    <published>2024-07-23T00:00:00Z</published>
    <summary type="text">Title: Ageing well with a lifelong disability: A scoping review
Authors: Smith, KJ; Gupta, S; Fortune, J; Lowton, K; Victor, C; Burke, E; Carew, MT; Livingstone, E; Creeger, M; Shanahan, P; Walsh, M; Ryan, JM
Abstract: Background and Objectives: &#xD;
Existing literature highlights notable health and social inequalities for people aging with a lifelong disability and the need for research to better understand how we can support this group to age well. This scoping review mapped existing literature related to “aging well” in people with lifelong disabilities.&#xD;
&#xD;
Research Design and Methods: &#xD;
Five scientific databases and gray literature sources were searched for studies related to “aging well” and “lifelong disability” (defined as a disability that a person had lived with since birth or early childhood).&#xD;
&#xD;
Results: &#xD;
We identified 81 studies that discussed aging well with a lifelong disability, with most (70%) focusing on intellectual disabilities. Two themes captured existing research on aging well with a lifelong disability: (1) framing aging well with a lifelong disability, which included the ways that people with lifelong disability, their supporters, and existing research frame aging well for this group and (2) supporting people to age well with a lifelong disability, which involves the micro-, meso-, and macro-level factors where research suggests interventions to facilitate aging well could be situated.&#xD;
&#xD;
Discussion and Implications: &#xD;
This synthesis highlights how aging well is currently framed in the literature and where interventions to improve aging well in this group could be situated. Literature highlights the importance of considering multilevel interventions to improve aging well. Evidence gaps include the lack of research conducted with groups other than those with intellectual disabilities and the need for more research examining aging well interventions.
Description: Data Availability: &#xD;
The search strategy is available as Supplementary Material and protocol was preregistered on the Open Science Framework (https://osf.io/y42md).</summary>
    <dc:date>2024-07-23T00:00:00Z</dc:date>
  </entry>
  <entry>
    <title>Mental health difficulties in cerebral palsy: A qualitative study of young people's and parents' perspectives</title>
    <link rel="alternate" href="http://bura.brunel.ac.uk/handle/2438/33090" />
    <author>
      <name>Manikandan, M</name>
    </author>
    <author>
      <name>Fortune, J</name>
    </author>
    <author>
      <name>Burke, J</name>
    </author>
    <author>
      <name>Walsh, A</name>
    </author>
    <author>
      <name>Twohig, A</name>
    </author>
    <author>
      <name>McClelland, I</name>
    </author>
    <author>
      <name>Breen, A</name>
    </author>
    <author>
      <name>Norris, M</name>
    </author>
    <author>
      <name>Ryan, JM</name>
    </author>
    <author>
      <name>RELATE-CP study team</name>
    </author>
    <id>http://bura.brunel.ac.uk/handle/2438/33090</id>
    <updated>2026-04-02T02:00:54Z</updated>
    <published>2026-03-04T00:00:00Z</published>
    <summary type="text">Title: Mental health difficulties in cerebral palsy: A qualitative study of young people's and parents' perspectives
Authors: Manikandan, M; Fortune, J; Burke, J; Walsh, A; Twohig, A; McClelland, I; Breen, A; Norris, M; Ryan, JM; RELATE-CP study team
Abstract: Aim: &#xD;
To explore the experiences of mental health difficulties and access to mental health support among young people with cerebral palsy (CP).&#xD;
&#xD;
Method: &#xD;
We used a qualitative descriptive design. Participants were young people with CP aged 13 to 25 years and parents of children with CP (6–25 years). Nineteen semi-structured interviews were conducted. A narrative thematic analysis was conducted to identify themes related to their mental health experiences.&#xD;
&#xD;
Results: &#xD;
Four themes were identified from the data: (1) understanding manifestations of mental health, triggers, and the importance of early intervention; (2) structural and human challenges in accessing mental health services; (3) the interplay between mental health and personal, social, educational, and familial challenges; (4) navigating future aspirations and holistic mental health support.&#xD;
&#xD;
Interpretation: &#xD;
People with CP face complex, interconnected challenges to their mental health, influenced by personal, family, social, and systemic factors. Mental health difficulties often go unrecognized or are inadequately addressed, highlighting the need for early identification, integrated service provision, and holistic, person-centred interventions that support young people and their families.
Description: Data Availability Statement: &#xD;
Data from interviews with participants cannot be sufficiently de-identified and participants did not give written consent for future use of their data. Therefore, supporting data are not available on request.; Members of the RELATE-CP study team are listed in the Acknowledgements (https://onlinelibrary.wiley.com/doi/10.1111/dmcn.70229#dmcn70229-sec-0024-title).; Supporting Information is available online at: https://onlinelibrary.wiley.com/doi/10.1111/dmcn.70229#support-information-section .</summary>
    <dc:date>2026-03-04T00:00:00Z</dc:date>
  </entry>
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