https://bura.brunel.ac.uk/handle/2438/13040 2026-09-16T04:54:15Z https://bura.brunel.ac.uk/handle/2438/33680 Title: Balancing organisational frameworks and the human experience when working with patients in prolonged disorder of consciousness in Switzerland: a reflexive thematic analysis Authors: Vogelin, Solveig; Norris, Meriel Abstract: Purpose: Patients in prolonged disorder of consciousness (PDOC) require complex care from a multi-disciplinary team. Delivering this holistic care can be demanding for healthcare professionals (HCP), and yet little is known of their experiences. This qualitative study was aiming to explore the experiences HCP have when working with patients with PDOC in a specialised rehabilitation unit in Switzerland, and potential support mechanisms used by staff. Materials and methods: A qualitative study, adopting a contextualist approach. Eight participants from four different professions, based in a specialised PDOC unit in Switzerland, undertook semi-structured online interviews. Verbatim transcripts were analysed using reflexive thematic analysis. Findings: Three overarching themes, including ten sub-themes, were developed: (1) Impacts and dynamics of PDOC care; (2) Flexible structural framework as the base in PDOC care; and (3) Human interactions are at the centre of care. These led to the understanding that to acquire patient-centred care, a fragile balance between flexible organisational frameworks and human interactions, with a flow of communication, is needed. Conclusion: The findings highlight that the balance between a flexible framework and human interactions form the basis for patient-centred care of HCP when providing care to patients with PDOC on a specialised rehabilitation unit in Switzerland. IMPLICATION FOR REHABILITATION • Patients in prolonged disorder of consciousness (PDOC) require complex physical care from a multi-disciplinary team, in addition to decision making and care of relatives. • Delivering care to PDOC patients impacts healthcare professionals in different ways, requiring support mechanisms in place. • A balance between a flexible organisational framework and human interactions is needed to optimise the delivery of person-centred care provided by healthcare professionals caring for patients with PDOC in a rehabilitation setting. Description: Anonymised interview transcripts in the original language from participants who consented to data sharing, plus other supporting information is available on the Open Science Framework: https://doi.org/10.17605/OSF.IO/HW6FG . 2026-07-16T00:00:00Z https://bura.brunel.ac.uk/handle/2438/33583 Title: The Value of Religion, Spirituality, and Humanism to Older People Authors: Nelson-Becker, H; Pickard, JG Editors: Twigg, J; Martin, W Abstract: The sustaining bottom note of religion, spiritual and humanistic beliefs is set by the cultural tone. Older adults are likely to have matured in a spiritual/religious milieu and to display religious commitment. Their multidetermined religious and spiritual perspectives may influence a growth orientation that leads to wisdom or results in rigidity. This chapter points to ways culture integrates with spiritual, religious, and humanistic beliefs, ethics, behaviour, and sacred texts in the lives of older people. The role of suffering, ritual, and how death is honoured and remembered are briefly addressed. 2026-01-30T00:00:00Z https://bura.brunel.ac.uk/handle/2438/33581 Title: Spirituality and social work: theory and practice Authors: Nelson-Becker, H Editors: Fouche, C; Beddoe, L Abstract: Spirituality, religion, and meaning are human needs that are inscribed within international social work professional standards and ethical codes. Definitions used in the social work literature cover a complex spectrum resulting in a common, though fluid, understanding. Theories such as existentialism, a person-centred approach, and humanism all provide support and background for the way spirituality and/or religion may be addressed as coping strategies. It is important to acknowledge the role religious and spiritual perspectives or actions have had in providing support or harm to service users. The fluctuating history of rejection, followed by increasing acceptance of spirituality in the profession is ongoing. The nature of spirituality in practice with service users is briefly addressed and ethical practice issues are discussed. Spirituality may form an important part of a service user plan to maintain wellbeing and achieve resilience. Spiritual competence, like cultural competence, is a goal for all social workers. 2026-06-16T00:00:00Z https://bura.brunel.ac.uk/handle/2438/33380 Title: Trustworthiness in pain research is essential. Developing and implementing the ENTRUST-PE framework Authors: O'Connell, NE; Belton, J; Cashin, AG; Eccleston, C; Ferraro, MC; Keefe, F; Knaggs, R; Norris, E; Pogatzki-Zahn, EM; Palermo, TM; Pickering, G; Rice, ASC; Segelcke, D; Sharma, S; Smart, KM; Soliman, N; Toelle, TR; Stewart, G; Vollert, J; Wainwright, E Abstract: ... Description: ... 2026-01-01T00:00:00Z