Brunel University Research Archive(BURA) preserves and enables easy and open access to all
types of digital content. It showcases Brunel's research outputs.
Research contained within BURA is open access, although some publications may be subject
to publisher imposed embargoes. All awarded PhD theses are also archived on BURA.
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| Issue Date | Title | Author(s) |
|---|---|---|
| 2016 | Experiences of caregivers of children with inherited metabolic diseases: A qualitative study | Siddiq, S; Wilson, BJ; Graham, ID; Lamoureux, M; Khangura, SD; Tingley, K; Tessier, L; Chakraborty, P; Coyle, D; Dyack, S; Gillis, J; Greenberg, C; Hayeems, RZ; Jain-Ghai, S; Kronick, JB; Laberge, A-M; Little, J; Mitchell, JJ; Prasad, C; Siriwardena, K; Sparkes, R; Speechley, KN; Stockler, S; Trakadis, Y; Wafa, S; Walia, J; Wilson, K; Yuskiv, N; Potter, BK |
| 2015 | Scoping review of patient- and family-oriented outcomes and measures for chronic pediatric disease. | Karaceper, MD; Trakadis, Y; Mitchell, JJ; Chakraborty, P; Tingley, K; Coyle, D; Grosse, SD; Kronick, JB; Laberge, A-M; Little, J; Prasad, C; Sikora, L; Siriwardena, K; Sparkes, R; Speechley, KN; Stockler, S; Wilson, BJ; Wilson, K; Zayed, R; Potter, BK; Canadian Inherited Metabolic Diseases Research Network |
| 2012 | Achieving the "triple aim" for inborn errors of metabolism: a review of challenges to outcomes research and presentation of a new practice-based evidence framework | Potter, BK; Chakraborty, P; Kronick, JB; Wilson, K; Coyle, D; Feigenbaum, A; Geraghty, MT; Karaceper, MD; Little, J; Mhanni, A; Mitchell, JJ; Siriwardena, K; Wilson, BJ; Syrowatka, A |
| 2018 | Using a meta-narrative literature review and focus groups with key stakeholders to identify perceived challenges and solutions for generating robust evidence on the effectiveness of treatments for rare diseases | Tingley, K; Coyle, D; Graham, ID; Sikora, L; Chakraborty, P; Wilson, K; Mitchell, JJ; Stockler-Ipsiroglu, S; Potter, BK |