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Issue Date | Title | Author(s) |
---|---|---|
2016 | Experiences of caregivers of children with inherited metabolic diseases: A qualitative study | Siddiq, S; Wilson, BJ; Graham, ID; Lamoureux, M; Khangura, SD; Tingley, K; Tessier, L; Chakraborty, P; Coyle, D; Dyack, S; Gillis, J; Greenberg, C; Hayeems, RZ; Jain-Ghai, S; Kronick, JB; Laberge, A-M; Little, J; Mitchell, JJ; Prasad, C; Siriwardena, K; Sparkes, R; Speechley, KN; Stockler, S; Trakadis, Y; Wafa, S; Walia, J; Wilson, K; Yuskiv, N; Potter, BK |
2015 | Scoping review of patient- and family-oriented outcomes and measures for chronic pediatric disease. | Karaceper, MD; Trakadis, Y; Mitchell, JJ; Chakraborty, P; Tingley, K; Coyle, D; Grosse, SD; Kronick, JB; Laberge, A-M; Little, J; Prasad, C; Sikora, L; Siriwardena, K; Sparkes, R; Speechley, KN; Stockler, S; Wilson, BJ; Wilson, K; Zayed, R; Potter, BK; Canadian Inherited Metabolic Diseases Research Network |
2018 | Using a meta-narrative literature review and focus groups with key stakeholders to identify perceived challenges and solutions for generating robust evidence on the effectiveness of treatments for rare diseases | Tingley, K; Coyle, D; Graham, ID; Sikora, L; Chakraborty, P; Wilson, K; Mitchell, JJ; Stockler-Ipsiroglu, S; Potter, BK |