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dc.contributor.authorClare, L-
dc.contributor.authorWu, Y-T-
dc.contributor.authorQuinn, C-
dc.contributor.authorJones, IR-
dc.contributor.authorVictor, C-
dc.contributor.authorNelis, S-
dc.contributor.authorMartyr, M-
dc.contributor.authorLitherland, R-
dc.contributor.authorPickett, JA-
dc.contributor.authorHindle, JV-
dc.contributor.authorJones, RW-
dc.contributor.authorKnapp, M-
dc.contributor.authorKopelman, MD-
dc.contributor.authorMorris, RG-
dc.contributor.authorRusted, JM-
dc.contributor.authorThom, JM-
dc.contributor.authorLamont, RA-
dc.contributor.authorHenderson, C-
dc.contributor.authorRippon, I-
dc.contributor.authorHillman, A-
dc.contributor.authorMatthews, FE-
dc.contributor.authorIDEAL Study Team-
dc.identifier.citationClare, L., Wu, Y.-T., Quinn, C., Jones, I.R., Victor, C.R., Nelis, S.M., Martyr, A., Litherland, R., Pickett, J.A., Hindle, J.V,. Jones, R.W.. (2019) 'A comprehensive model of factors associated with capability to “live well” for family caregivers of people living with mild-to-moderate dementia: findings from the IDEAL study', Alzheimer disease and associated disorders. 33 (1), pp. 29 - 35. doi: 10.1097/WAD.0000000000000285.en_US
dc.description.abstract© 2018 The Author(s). Introduction: Understanding key influences on outcomes for caregivers of people with dementia is hampered by inconsistent conceptualisation and measurement of outcomes and limited evidence about the relative impact of different variables. We aimed to address these issues. Method: We analysed data from 1283 caregivers of community-dwelling individuals with mild-to-moderate dementia in the IDEAL cohort. We generated a ‘living well’ latent factor from measures of quality of life, satisfaction with life and well-being. We used structural equation modelling to derive latent variables for seven domains reflecting caregivers’ perceptions of their personal resources and experiences, and to examine the associations with caregivers’ perceptions of their capability to ‘live well’. Results: The domain of Psychological characteristics and psychological health was most strongly related to living well (2.53; 95% CI 2.08, 2.97), followed by Physical fitness and physical health (1.48, 95% CI 1.04, 1.91) and Experiencing caregiving (1.34; 95% CI 0.99, 1.70). Capitals, assets and resources (0.68, 95% CI 0.35, 1.00) and Relationship with the person with dementia (-0.22, 95% CI -0.41, -0.03) had smaller, significant associations. Social location (0.28, 95% CI -0.33, 0.89) and Managing everyday life with dementia (0.06, 95% CI -0.15, 0.28) were not significantly associated with living well. Discussion: These findings demonstrate the importance of supporting caregivers’ psychological and physical health and their ability to develop and maintain positive coping strategies, as well as enabling them to maintain vital social capitals, assets and resources.en_US
dc.description.sponsorshipEconomic and Social Research Council (UK) and the National Institute for Health Research (UK)en_US
dc.publisherLippincott, Williams & Wilkinsen_US
dc.rightsThis is an open access article distributed under the Creative Commons Attribution License 4.0 (CCBY), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
dc.subjectquality of lifeen_US
dc.subjectsatisfaction with lifeen_US
dc.titleA comprehensive model of factors associated with capability to ‘live well’ for family caregivers of people living with mild-to-moderate dementia: findings from the IDEAL studyen_US
dc.relation.isPartOfAlzheimer’s Disease and Associated Disorders-
Appears in Collections:Dept of Health Sciences Research Papers

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