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http://bura.brunel.ac.uk/handle/2438/17317
Title: | The information gap for children and young people with acquired brain injury |
Authors: | Dunford, C Cobbold, C Ray, I Wales, L |
Keywords: | information;children;youth;acquired brain injury |
Issue Date: | 6-Feb-2019 |
Publisher: | Taylor & Francis |
Citation: | Developmental Neurorehabilitation, 2020, 23(1), 1 - 8 |
Abstract: | © 2019 The Author(s). Statement of Purpose This study explored the information requirements of children/youth with an acquired brain injury. Methods An on-line survey (n=16), focus group (n=5) and in-depth semi-structured interviews (n=3) elicited the views of 24 children/youth with ABI. A priori thematic coding was used to analyse the data. Results Five themes emerged: stage and age, school, friendship and peers, delivery methods and information content. The desired information changes over time depending on age and time since injury. Children/youth want their friends and teachers to access information on brain injury. Children/youth want information delivered through a range of channels, including videos (featuring genuine case studies), apps and board games. Children/youth wanted information specific to their injury, information on brain injury more generally, and practical strategies for overcoming problems. Conclusions Children/youth with ABI were able to express views about their information needs, which change over time and include a range of channels. |
URI: | https://bura.brunel.ac.uk/handle/2438/17317 |
DOI: | https://doi.org/10.1080/17518423.2018.1564394 |
ISSN: | 1363-8491 |
Appears in Collections: | Dept of Health Sciences Research Papers |
Files in This Item:
File | Description | Size | Format | |
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FullText.pdf | 1.31 MB | Adobe PDF | View/Open |
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