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dc.contributor.authorClare, L-
dc.contributor.authorGamble, LD-
dc.contributor.authorMartyr, A-
dc.contributor.authorSabatini, S-
dc.contributor.authorNelis, SM-
dc.contributor.authorQuinn, C-
dc.contributor.authorPentecost, C-
dc.contributor.authorVictor, C-
dc.contributor.authorJones, RW-
dc.contributor.authorJones, IR-
dc.contributor.authorKnapp, M-
dc.contributor.authorLitherland, R-
dc.contributor.authorMorris, RG-
dc.contributor.authorRusted, JM-
dc.contributor.authorThom, JM-
dc.contributor.authorCollins, R-
dc.contributor.authorHenderson, C-
dc.contributor.authorMatthews, FE-
dc.identifier.citationClare, L., Gamble, L.D., Martyr, A., Sabatini, S., Nelis, S.M., Quinn, C., Pentecost, C., Victor, C., Jones, R.W., Jones, I.R., Knapp, M., Litherland, R., Morris, R.G., Rusted, J.M., Thom, J.M., Collins, R., Henderson, C. and Matthews, F.E. (2022) '‘Living well’ trajectories among family caregivers of people with mild-to-moderate dementia in the IDEAL cohort', The Journals of Gerontology: Series B, 0 (in press), pp. 1 - 39 (39). doi: 10.1093/geronb/gbac090.en_US
dc.descriptionSupplementary data: gbac090_suppl_Supplementary_Material - pdf file available at:
dc.description.abstractCopyright © The Author(s) 2022. Background and objectives: Understanding whether and how caregivers’ capability to ‘live well’ changes over time, and the factors associated with change, could help target effective caregiver support. Research design and methods: We analyzed three timepoints (12 months apart) of IDEAL cohort data from co-resident spouse caregivers of community-dwelling individuals who had mild-to-moderate dementia at baseline, using latent growth and growth mixture models. Capability to ‘live well’ was derived from measures of quality of life, well-being, and satisfaction with life. Results: Data from 995 spouse caregivers at Time 1, 780 at Time 2, and 601 at Time 3 were included. Mean ‘living well’ score decreased slightly over time. We identified three classes of caregivers: one with higher baseline scores declining slightly over time (Stable; 66.8%), one with low baseline scores remaining stable (Lower Stable; 26.0%), and one with higher baseline scores showing marked decline (Declining; 7.2%). Scores on baseline measures differentiated the Lower Stable, but not the Declining, from the Stable class. Longitudinally, the Declining class was associated with care recipient cognitive decline and increasing hours providing care, as well as caregiver stress and depression. Findings were similar when caregivers with other kin-relationships were included. Discussion and implications: The findings indicate the importance of prompt identification of, and support for, caregivers at risk of declining capability to ‘live well’ and may assist in identifying those caregivers who could benefit most from targeted support.en_US
dc.description.sponsorshipEconomic and Social Research Council (ESRC, part of UK Research and Innovation, UKRI) and National Institute for Health and Care Research (NIHR) grant ES/L001853/2 to L. Clare, I.R. Jones, C. Victor, J.V. Hindle, R.W. Jones, M. Knapp, M. Kopelman, R. Litherland, A. Martyr, F. Matthews, R.G. Morris, S.M. Nelis, J. Pickett, C. Quinn, J. Rusted, J. Thom; Alzheimer‟s Society Centre of Excellence grant 348, ASPR2-16-001 to L. Clare, I.R. Jones, C. Victor, C. Ballard, A. Hillman, J.V. Hindle, J. Hughes, R.W. Jones, M. Knapp, R. Litherland, A. Martyr, F. Matthews, R.G. Morris, S.M. Nelis, C. Quinn, and J. Rusted. This report is independent research supported by the National Institute for Health and Care Research Applied Research Collaboration South-West Peninsula.-
dc.format.extent1 - 39 (39)-
dc.publisherOxford University Press on behalf of The Gerontological Society of Americaen_US
dc.rightsCopyright © The Author(s) 2022. Published by Oxford University Press on behalf of The Gerontological Society of America. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (, which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.-
dc.subjectquality of lifeen_US
dc.subjectsatisfaction with life, well-beingen_US
dc.title‘Living well’ trajectories among family caregivers of people with mild-to-moderate dementia in the IDEAL cohorten_US
dc.relation.isPartOfThe Journals of Gerontology: Series B-
pubs.publication-statusPublished online-
dc.rights.holderThe Author(s)-
Appears in Collections:Dept of Health Sciences Research Papers

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