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Title: Mission creep / data misuse
Authors: Lau, PL
Issue Date: 19-Jun-2023
Publisher: EurGCT
Citation: Lau, P.L (2023) Mission creep / data misuse (European Gene and Cell Therapy Project). Edinburgh: EuroGCT, pp. 1 - 20. Available at: (accessed: 29 January 2024).
Series/Report no.: European Gene and Cell Therapy Project
Abstract: Data misuse, also known as mission creep, in the context of this research pathway entry - goes to the core of (mis)using a patient’s personal health data, beyond the purpose(s) for which it was collected. Whilst it may sometimes be closely related to function creep, a very well-known phenomenon in the field of science and technology studies (describing an instance where systems or technologies expand beyond their initial scope of deployment) - mission creep or data misuse is more focused on the legitimacy and purposes for which patient data is collected, used, stored, and processed.
Description: EuroGCT provides reliable and accessible information about the use of cells and genetic material to treat disease - for the public, patients, and researchers.
Other Identifiers: ORCID iD: Pin Lean Lau
Appears in Collections:Brunel Law School Research Papers

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