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DC Field | Value | Language |
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dc.contributor.author | Mortensen, AH | - |
dc.contributor.author | Nåden, D | - |
dc.contributor.author | Karterud, D | - |
dc.contributor.author | Gallagher, A | - |
dc.contributor.author | Lohne, V | - |
dc.date.accessioned | 2024-08-23T15:08:58Z | - |
dc.date.available | 2024-08-23T15:08:58Z | - |
dc.date.issued | 2024-06-21 | - |
dc.identifier | ORCiD: Anne Helene Mortensen https://orcid.org/0000-0003-1810-6949 | - |
dc.identifier | ORCiD: Ann Gallagher https://orcid.org/0000-0002-2264-024X | - |
dc.identifier | 2370545 | - |
dc.identifier.citation | Mortensen, A.H. et al. (2024) 'A qualitative study of family members’ perspectives regarding decision-making for nursing home residents’ care', International Journal of Qualitative Studies on Health and Well-being, 19 (1), 2370545, pp. 1 - 11. doi: 10.1080/17482631.2024.2370545. | en_US |
dc.identifier.issn | 1748-2623 | - |
dc.identifier.uri | https://bura.brunel.ac.uk/handle/2438/29607 | - |
dc.description | Reporting method: This study adheres to EQUATOR guidelines for qualitative research using the SRQR Standards for Reporting Qualitative Research (O’Brien et al., Citation 2014). | en_US |
dc.description | Supplementary material: Supplemental data for this article can be accessed online at https://doi.org/10.1080/17482631.2024.2370545 . | - |
dc.description.abstract | Purpose: We explored how family caregivers perceive decision-making regarding the care of nursing home residents. Methods: This qualitative study used Flemming’s Gadamerian-based research method. In person semi-structured interviews about decision-making concerning residents’ care were conducted with 13 family members (nine women, four men) of residents of three Norwegian nursing homes. Findings: The following themes emerged: Excessive focus on autonomy threatens resident wellbeing and safety. Resident wellbeing is the caregiver’s responsibility. Resident wellbeing serves as a guiding principle. Conclusions: The family members of residents and the nursing home caregivers disagreed about the significance of upholding resident autonomy to respect residents’ dignity. The family members held that not all instances where residents refused care reflect autonomy situations as care refusal often does not reflect the resident's true values and standards but rather, stems from barriers that render necessary care actions difficult. In situations where residents refuse essential care or when the refusal does not align with the residents second-order values, the family members suggested that caregivers strive to understand the causes of refusal and seek non-coercive ways to navigate it. Hence, the family members seemed to endorse the use of soft paternalism in nursing homes to safeguard residents’ wellbeing and dignity. | en_US |
dc.description.sponsorship | This research received no specific grant from any funding agency in the public, commercial, or not-for-profit sectors. | en_US |
dc.format.extent | 1 - 11 | - |
dc.format.medium | Print-Electronic | - |
dc.language | English | - |
dc.language.iso | en_US | en_US |
dc.publisher | Taylor & Francis | en_US |
dc.rights | Copyright © 2024 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.This is an Open Access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. The terms on which this article has been published allow the posting of the Accepted Manuscript in a repository by the author(s) or with their consent. | - |
dc.rights.uri | https://creativecommons.org/licenses/by/4.0/ | - |
dc.subject | qualitative research | en_US |
dc.subject | hermeneutical interpretation | en_US |
dc.subject | interview | en_US |
dc.subject | nursing homes | en_US |
dc.subject | family | en_US |
dc.subject | dignity | en_US |
dc.subject | paternalism | en_US |
dc.subject | autonomy | en_US |
dc.subject | refusal of care | en_US |
dc.subject | decision making | en_US |
dc.title | A qualitative study of family members’ perspectives regarding decision-making for nursing home residents’ care | en_US |
dc.type | Article | en_US |
dc.date.dateAccepted | 2024-06-17 | - |
dc.identifier.doi | https://doi.org/10.1080/17482631.2024.2370545 | - |
dc.relation.isPartOf | International Journal of Qualitative Studies on Health and Well-being | - |
pubs.issue | 1 | - |
pubs.publication-status | Published | - |
pubs.volume | 19 | - |
dc.identifier.eissn | 1748-2631 | - |
dc.rights.license | https://creativecommons.org/licenses/by/4.0/legalcode.en | - |
dc.rights.holder | The Author(s) | - |
Appears in Collections: | Dept of Health Sciences Research Papers |
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FullText.pdf | Copyright © 2024 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.This is an Open Access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. The terms on which this article has been published allow the posting of the Accepted Manuscript in a repository by the author(s) or with their consent. | 302.29 kB | Adobe PDF | View/Open |
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