Mental health difficulties in cerebral palsy: A qualitative study of young people's and parents' perspectives

Abstract

Aim: To explore the experiences of mental health difficulties and access to mental health support among young people with cerebral palsy (CP).

Method: We used a qualitative descriptive design. Participants were young people with CP aged 13 to 25 years and parents of children with CP (6–25 years). Nineteen semi-structured interviews were conducted. A narrative thematic analysis was conducted to identify themes related to their mental health experiences.

Results: Four themes were identified from the data: (1) understanding manifestations of mental health, triggers, and the importance of early intervention; (2) structural and human challenges in accessing mental health services; (3) the interplay between mental health and personal, social, educational, and familial challenges; (4) navigating future aspirations and holistic mental health support.

Interpretation: People with CP face complex, interconnected challenges to their mental health, influenced by personal, family, social, and systemic factors. Mental health difficulties often go unrecognized or are inadequately addressed, highlighting the need for early identification, integrated service provision, and holistic, person-centred interventions that support young people and their families.