Please use this identifier to cite or link to this item:
http://bura.brunel.ac.uk/handle/2438/23561
Title: | Living with dementia under COVID-19 restrictions: coping and support needs among people with dementia and carers from the IDEAL cohort |
Authors: | O'Rourke, G Pentecost, C Eleanor, VDH Victor, C Quinn, C Hillman, A Litherland, R Clare, L |
Keywords: | dementia;carers;COVID-19;qualitative;interviews;living well;social;coping;support |
Issue Date: | 16-Nov-2021 |
Publisher: | Cambridge University Press |
Citation: | O'Rourke, G. et al. (2021) 'Living with dementia under COVID-19 restrictions: coping and support needs among people with dementia and carers from the IDEAL cohort,' Ageing and Society, 42 (10), pp. 2424 - 2446. doi: 10.1017/S0144686X21001719. |
Abstract: | Stringent social restrictions imposed during 2020 to counter the spread of the COVID-19 pandemic could significantly affect the wellbeing and quality of life of people with dementia living in the community and their family carers. We explored the impact of COVID-19 restrictions on people with dementia and family carers in England and considered how negative effects might be mitigated. We conducted semi-structured telephone interviews with 11 people with dementia and 11 family carers who were ongoing participants in the IDEAL cohort during the initial ‘lockdown’ period in May and June 2020, and follow-up interviews with five people with dementia and two carers as restrictions were eased in July. We analysed interview data and triangulated the findings with issues raised in dementia-specific online forums. Findings showed some people with dementia were coping well, but others experienced a range of negative impacts, with varying degrees of improvement as restrictions were eased. The need for clear personalised information relating to COVID-19 and the value of support in the form of regular ‘just checking’ phone calls was emphasised. This exceptional situation provides a natural demonstration of how social and psychological resources shape the potential to ‘live well’ with dementia. While some support is recommended for all, a personalised approach to determine needs and coping ability would ensure that further practical and emotional support is targeted effectively. |
Description: | Supplementary material is available online at: https://www.cambridge.org/core/journals/ageing-and-society/article/living-with-dementia-under-covid19-restrictions-coping-and-support-needs-among-people-with-dementia-and-carers-from-the-ideal-cohort/D7EBD035B82FF4E1AA0D797AABBBC424#supplementary-materials . |
URI: | https://bura.brunel.ac.uk/handle/2438/23561 |
DOI: | https://doi.org/10.1017/S0144686X21001719 |
ISSN: | 0144-686X |
Other Identifiers: | ORCiD: Gareth O'Rourke https://orcid.org/0000-0001-7615-8849 ORCiD: Claire Pentecost https://orcid.org/0000-0003-2048-5538 ORCiD: Eleanor van den Heuvel https://orcid.org/0000-0003-3603-2576 ORCiD: Christina Victor: https://orcid.org/0000-0002-4213-3974 ORCiD: Catherine Quinn https://orcid.org/0000-0001-9553-853X ORCiD: Alexandra Hillman https://orcid.org/0000-0003-1859-1075 ORCiD:Linda Clare https://orcid.org/0000-0003-3989-5318 |
Appears in Collections: | Dept of Health Sciences Research Papers |
Files in This Item:
File | Description | Size | Format | |
---|---|---|---|---|
FullText.pdf | Copyright © The Author(s), 2021. Published by Cambridge University Press. This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited. | 357.94 kB | Adobe PDF | View/Open |
This item is licensed under a Creative Commons License