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Title: | Transition to adult services experienced by young people with cerebral palsy: A cross‐sectional study |
Authors: | Ryan, JM Walsh, M Owens, M Byrne, M Kroll, T Hensey, O Kerr, C Norris, M Walsh, A Lavelle, G Fortune, J |
Issue Date: | 21-Jun-2022 |
Publisher: | John Wiley & Sons Ltd on behalf of Mac Keith Press |
Citation: | Ryan, J.M. et al. (2022) 'Transition to adult services experienced by young people with cerebral palsy: A cross-sectional study. Developmental Medicine & Child Neurology, 65 (2) pp. 285 - 293. doi: 10.1111/dmcn.15317. |
Abstract: | Aim: To assess if young people with cerebral palsy experience and health profession-als provide practices that may improve transition from child to adult health services.Method: Seventy-five young people (31 females, 44 males; mean age 18 years 5 months [standard deviation 2 years 2 months]) and/or parents and 108 health professionals completed a questionnaire describing their experience or the provision of nine tran-sition practices.Results: The percentage of young people reporting each practice was: appropriate parent involvement (90%); promotion of health self-efficacy (37%); named worker who supports the transition process (36%); self-management support for physical health (36%); self-management support for mental health (17%); information about the transition process (24%); meeting the adult team (16%); and life skills training (16%). Post-discharge, 10% of young people reported that their general practitioner (GP) received a discharge letter. The percentage of health professionals reporting each practice was: promotion of health self-efficacy (73.2%); self-management support (73.2%); information (69%); consulting the parent and young person about parent involvement (63% and 66%); discharge letter to a GP (55%); life skills training (36%); named worker (35%); meeting the adult team (30%); and senior manager (20%).Interpretation: Many young people did not experience practices that may improve the experience and outcomes of transition. Young people should be involved in the development and delivery of transition to ensure it meets their needs. |
Description: | Data availability statement: The data that support the findings of this study are openly available in Zenodo at http://doi.org/10.5281/zenodo.6636481 |
URI: | https://bura.brunel.ac.uk/handle/2438/24732 |
DOI: | https://doi.org/10.1111/dmcn.15317 |
ISSN: | 0012-1622 |
Other Identifiers: | ORCiD: Jennifer M Ryan https://orcid.org/0000-0003-3768-2132 ORCiD: Meriel Norris https://orcid.org/0000-0001-7779-5612 |
Appears in Collections: | Dept of Health Sciences Research Papers |
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